Above and Beyond

Occasionally, I find myself sending out mass emails to family and friends asking for some sort of “viral” help. Many of you have been involved in online voting to win funds for some sort of Sanfilippo research. I usually initiate this voting with mass emails encouraging friends and family to go online and vote. With all your help, we’ve won a majority of these contests. Thank you! I also send mass emails to a select few family and friends asking for another kind of help. At times, I’ll get emails that offer free diaper samples or a chance to win a sleep safe bed. Basically, special needs give a ways that could come in very handy. Recently, I sent a mass email to that select few asking them to get free diaper samples for us. I then had some of those recipients send them out to people they knew that would be happy to help. A week or so ago I got an entire pack of diapers in the mail. I thought it was our free sample. I put it aside thinking we’re going to be set with diapers for awhile. The other day, my mom asked me if I got a pack of diapers in the mail. I said yes, and shared in my joy of getting an entire pack for free (when initially I thought we may only get one or two….hence the help hoping to maybe get an entire pack with all the email participants.) She then informed me that my great aunt’s friend wanted to do more than just a free sample and ordered us a pack. I’m so thankful for this gesture. I had no intentions of people ordering us diapers, or looking for a hand out. Just a free sample that may add up to a pack. When people go above and beyond, it humbles me and makes me want to pay it forward. We’ve seen a lot of generosity, and that going above and beyond since Livia’s diagnosis. I’m learning that people want to do something or want to help. And if it’s buying us a pack of diapers, which does help, then I feel like they are easing the pain of a terminal situation. What I mean by this is that people who want to be involved in our family, and know the details of Livia’s diagnosis, know that right now there is nothing out there to help her. Our responsibility as her parents, is to give her the best life possible, right now. That means, keeping her healthy and keeping up with her appointments, providing her safety with more than you can imagine, keeping her happy, and loving her unconditionally. People want to help with this, and we can’t do it on our own. It takes a community to raise a child (this is an entire new blog with that past statement!) Anyway, I’m so appreciative of the people that want to help our family and the foundation. Thank you for the diapers, the cards, the emails, the money, the words of encouragement, the prayers, and everything in between that I’m leaving out. Every single “above and beyond” touches my heart and helps my child! This is such a good example of what we want Liv Life to look like. I know this is my way of paying it forward.

Proverbs 11 24:25
One gives freely, yet grows all the richer; another withholds what he should give, and only suffers want. Whoever brings blessing will be enriched, and one who waters will himself be watered.

Luke 6:38 Give, and it will be given to you. A good measure, pressed down, shaken together and running over, will be poured into your lap. For with the measure you use, it will be measured to you.”