Archive: March 2015

A Letter

Dear Sanfilippo Syndrome, I’m taking the time to write this letter to you, because frankly, it’s time that I let you know how I really feel. It’s been 5 years, 8 months and 11 days since we’ve found out about you.  That’s 2080 days we’ve known your name.  I’ve been quite content not to address […]

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