Archive: November 2012


On Saturday, November 17th, Livia Grace was granted her Make~A~Wish.  This process had been in the works for two years.  Not her specific wish, but the wish process.  In the beginning, we couldn’t decide on “the wish.”  Jake and I are her voice, so we wanted to make sure this was going to be something […]

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FAQ about Sanfilippo Syndrome, Livia, and the Hubert Family

Hello Blog Land.  I feel very out of touch with my blog, and have a HUGE desire to jump back into writing.  It’s so therapeutic, and in a small way, I feel like I’m making a difference along with leaving a legacy for Livia. I’ve always said that no one ever wants to be in […]

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