This is such a critical time, and awareness is what we need! There is hope for a cure or a treatment on the horizon. As a family, we have so many ideas and with our new website we will be able to promote awareness and fundraise. This was on TV not long ago and it’s a great way to spread the word. Please join us in the fight to save Liv’s life. Check out the link’s below to see what some other people are doing to raise awareness and fight for their own children’s lives as well as all children affected with this unfair, nasty disorder. Please feel free to contribute your ideas to spreading awareness or good fundraising ideas.