Since Finley has become verbal, she knows what she wants. Deep down, I really love this about her. It can be very hard trying to compromise with an extremely strong willed 2 year old that talks well, at times. One of her favorite things that she says to me on a daily basis is that […]
Yesterday was a really difficult day. I got the news that Rachel Ferguson, 9, with MPSIII A passed away peacefully in her sleep. 9 years old! This hit me like a TON of bricks. I’m part of a MPS group on facebook, so there were a lot of people giving this family words of encouragement […]
I was asked a few weeks ago to be a guest blogger on another blog called Life After Sunday. I was so surprised, humbled, amazed, excited that someone, and a blog like this wanted our story. Part one is up now and part two to be posted on Thursday. This is a Christian parenting blog […]
For those of you that know Jake and I and where we come from, you know that we are small town, country loving people. Jake grew up in the country his entire life. He and his family had a small hobby farm which I’ve heard a lot of the “critter stories.” From him showing chickens […]
My girls are so lucky to have Jake as their daddy. I always tell him that the girls constantly look for him when he’s not around. Jake plays with the girls differently than I do. He runs through the house with them, throws them in the air, bounces them on his knee, dances to the […]
Today is day 6 away from my girls. This past Saturday, Jake drove the girls half way to meet his mom and dad to drop off Liv and Finley for the week. Tomorrow, Jake and I will drive to central Illinois to meet them and stay home for another week. This past week has gone […]
Our cousins, The Black’s, organized a volleyball tournament to benefit our family and help with some of our medical expenses, bills, and costs. They put in a lot of hard work organizing the tournament, getting prizes, food, and of course players! It was such a wonderful gesture of help and love. Unfortunately, Livia got sick […]
7/8/11 marked our 2 year walk with Sanfilippo. It’s hard not to re-live that day. It’s hard not to re-visit those emotions we experienced. It was devastating. However, I also remember our friends and family that rallied around us. Finley was baptized soon after we got Liv’s diagnosis. I can remember sitting in church, tears […]
It’s once again the little things that mean so much to me. Nowadays, it seems like I’m constantly observing. I’m a “watcher” by trade. It seems that I intently, and constantly, am observing what my children are doing. I especially keep an eye on them when we are out of our comfort zone (our home). […]