I know it sounds silly, but I love having my nails painted. It’s very rare that I actually do. Taking the time to do my own nails is just that….taking time. I’ve tried to wait until night to give myself a manicure, but it’s always an epic fail. Waking up in the morning, hoping for […]
On Saturday, November 17th, Livia Grace was granted her Make~A~Wish. This process had been in the works for two years. Not her specific wish, but the wish process. In the beginning, we couldn’t decide on “the wish.” Jake and I are her voice, so we wanted to make sure this was going to be something […]
Hello Blog Land. I feel very out of touch with my blog, and have a HUGE desire to jump back into writing. It’s so therapeutic, and in a small way, I feel like I’m making a difference along with leaving a legacy for Livia. I’ve always said that no one ever wants to be in […]
I’ve often said that I would trade places with Livia if that meant I could save her life. I wonder though, if that really is a good trade. The one “blessing” that comes with Sanfilippo, is that there is no earthly hurt. No broken hearts. No worries. Livia knows nothing but happiness and joy. She […]
The 2012 school year has started, and the smell of fall is in the air. This is a big year for school for the Hubert’s. Jake started his head principal job at North Boone, Livia is in ALL DAY kindergarten, and Miss Finley Faith is in preschool 2 days a week. The days go by […]
I’ve been battling frustration lately, which makes me FRUSTRATED! This emotion really is an evil. I pondered over writing this blog, but then it just frustrated me constantly thinking about it so I decided to just let my fingers be the outlet. I don’t like to complain, I don’t really even like to vent about […]
The week of May 21st was a turning point week for me. Yes, it’s July 4th and I’m blogging about May. This blog has been on my mind since that week, but I haven’t been able to shape it until now. That week was a turning point in my life with Livia. I’m curious how […]
The Illinois Marathon is less than 48 hrs away. This year, Liv Life has done a fund raiser getting runners to send out letters trying to help raise funds for our cause. I have to say, it’s been a success with the few runners we have participating. Preparing for a marathon is not only a […]
This is a blog that I’ve been avoiding for long enough, it’s time to face the music……or lack there of. It saddens me to tell you that Livia’s speech is pretty much gone. She has lost so many sweet words that I long so badly to hear. Occasionally, she will mutter a random word. I […]