Dear Sanfilippo Syndrome, I’m taking the time to write this letter to you, because frankly, it’s time that I let you know how I really feel. It’s been 5 years, 8 months and 11 days since we’ve found out about you. That’s 2080 days we’ve known your name. I’ve been quite content not to address […]
I vividly remember many details of this week 8 years ago. I loved being pregnant. I felt good through the entire 9 months. I loved every pregnancy moment with both of my girls. I was on my feet a lot when I was pregnant with Liv. I was a surgical tech at the time. (Loved […]
Since July 2014, this beauty has struggled with sleep. Slowly over time, her nights have gotten worse. Scary. We’ve tried strict bed time routines, melatonin, co-sleeping, weighted blankets, so on and so on. Nothing was helping. We were helpless. We were sleep deprived. She was a zombie, and we were going through the motions. We […]
*2015* A new year. Fresh start, new resolutions, goals, organization, a new 12 month slapped on the wall (do people still do that?) Happy new year, and a Kumbya circle of “Auld Lang Syne.” I did my best to avoid all of it, until today. I was quite content in 2014. Jake and I celebrated […]
#tbt Throw back Thursday #fbf Flash back Friday I don’t know about you, but I love looking at “old” pictures. I have a great stash of photo’s that came from my grandma and grandpa Fish’s house. When my grandma passed away, and her house was being cleaned out, I grabbed as many as I was […]
“Pay it forward.” This is a term that I’m sure we are all familiar with. It originated with Lily Hardy Hammond in her 1916 book In the Garden of Delight. She described this “deed” as “alternative giving,” I love this because alternative means different, and giving means generosity. I always thought of “pay it forward” […]
The ice bucket challenge. How many of us are so aware of this? I’m sure somewhere in your conversation today, you will speak or hear about a bucket o ice! Have you been challenged? Taken the challenge? Have no idea what I’m talking about? Ask any random person to show your their Facebook, IG, Twitter, […]
Embracing change creates somewhat of a freedom. It does not, however, make the inevitable tolerable or less sad. It does not make the gut wrenching idea of losing my daughter any easier, but, it does help in transitions and decisions. Change is freeing if you are open and willing. Change can bring about situations that […]
I’m always touched when people talk and interact with Livia. Just today my breath was taken away when I stood back and watched a little boy sitting with Livia on the floor at the drop in. She was in her own little world and he was handing her toy after toy when she would drop […]