“I think it’s time to consider a feeding tube.” “We need to set up another neurology consultation because what you’re describing to us indicates seizure activity and a possible movement disorder.” “It must be so hard for you, as a family, to know that there is a treatment on the horizon, but it won’t be […]
What’s in a word? To me, it’s everything. What’s in silence? It’s heartbreak. Having a daughter with special needs puts us in the world of special needs. Online groups, acquaintances with children of the same diagnosis, etc. So, through these groups and friends re-posting different articles, I read a lot of them. I thought about […]
On this day, seven years ago, I became a mother. That snowy, beautiful day is etched into my brain. I can remember so many details that I strive to hold on to. It was a day that I had thought about for the majority of my then, 26 years. Being a mom was something I […]
I heard a news report yesterday while listening to KLove radio. The report was on a group of people who volunteered to be in a sleep study. One group slept much better than another group. Scientists took both groups, separately, to give them memory tests. Before the tests were administered, the group that was “sleepy” […]
As a parent, we have a primal instinct to protect. The second our child is born, our role is to frankly, keep them alive. Our babies depend on us, 100%, for at least the first several years of their lives. In the jungle, a lioness will go to any length to protect her cubs. She […]
Simplicity. This word has been a resounding theme for me. The simple, everyday moments are what help me survive. I’ve decided that stress and anxiety have no place in my world. It helps nothing. Now please, don’t get me wrong. I’m only human and sometimes these emotions find there way in. To be really honest, […]
For Jake Yesterday was a very emotional day for me. It comes out of nowhere, at times. Sometimes there are triggers, and I can pin point one. An MPS mother posted about a dream she had about her newly passed son. I got that this dream brought her comfort as well as extreme sadness and […]
When I look at Livia, it’s like looking through a pair of binoculars needing to be focused. Like an opportunity to look at something so spectacular and beautiful, but the lenses just need to be focused. That moment of clear, crisp vision. The focus. Looking through my binoculars lately, it’s been hard to focus. The […]
IF I were a betting person, I’d gamble that 99% of the people reading this has said or thought; “If I’d only known then what I know now……” It’s perspective on our past that has influenced the present in some way. We all look back on our past and maybe wish we would have done […]