Friends and Family………..Pepsi is giving out a $250,000 grant and all you have to do is vote everyday for the rest of the month. The group that has the most votes wins. This grant would mean money for research to help find a cure to save our children’s lives. This is free and easy. You […]
Livia communicates really well with me. She is able to tell me when something hurts or when she wants something that is out of reach. She tells me what she wants to eat, or doesn’t want to eat. Her drinks of preference are milk, water and tea. I love the simple requests that she makes. […]
TRUTH: I’ve been avoiding my blog like the plague. Lately, I’ve been in total denial of Sanfilippo. Livia is doing really well and so I’ve put everything on the back burner. Liv Life foundation included, but I will get to that a little later. I’ve gotten the privilege of helping in Liv’s classroom a couple […]
I was approached yesterday before pilates class by a friend, Ed. He is someone I’ve come to know through the Y and through running. He is a marathoner and someone I look up to. He came to me with a fund raiser idea for MPS. I instantly started crying and really couldn’t express my feelings […]
My Grandma Fish passed away Sunday, November 7th 2010. She entered into His loving arms being reunited with Grandpa Fish and her beloved Fe-Fe. She will be missed by so many people. My dad asked my sister and I to write our most fond memories of gma. Audra and I both read what we wrote. […]
Jake, the girls and I are so blessed to be parts of such amazing families. Being so far away from everyone is really hard. It’s not easy going through the everyday things without some sort of support. (We do have great friends that are here, but it’s just different with family.) Having the support from […]
I’m a frequent Facebooker and find myself having a love/hate relationship with it. I love it so much because I have a “relationship” or friendship with people or family members that I may not otherwise talk to (often). I love how easy it is to catch up with people and how easy it is to […]
This past weekend was an MPS family gathering at the Miller park zoo in Bloomington. It was a chance for Illinois families to gather, eat, enjoy the zoo and lend support to one another. We haven’t gone to a lot of gatherings, but when one is coming up I always get very nervous and anxious. […]
I look at my life and the productivity that I’m able to accomplish in a day. I have a great routine with the kids, and I thrive on that. There are some days when I am so ready to face anything. I can feel a strength from within that is so fierce. I’m ready to […]